Unfortunately yesterday morning the day after surgery Peyton had 2 seizures. This was something I was completely not expecting, but than again I wasn’t expecting ANY of this! Normally seeing this would of devastated me, but with everything I’ve been through these past almost 10 weeks it really didn’t phase me too much. Yes I shed a couple tears upon witnessing this, but for the most part I’m pretty much numb to everything at the moment.
The doctors were thinking and hoping the seizures were caused from her sodium and electrolyte levels dropping after her surgery. Even though they believed they knew the cause of them it was still quite an intense day. It seemed as if a different doctor was here every 5 minutes asking me every little detail about the seizures…I probably repeated the events at least 15 times. Her arms and her legs shook very mildly, her eyes were moving around and she was drooling out of the side of her mouth.
Luckily the nurses were able to stop them with a medication they explained was like a baby form of valium. They ran tests including a head ultrasound to make sure the blood thinner she’s on wasn’t causing bleeding in her brain “THANK GOD it wasn’t” and they ordered an EEG. The EEG consisted of 24 hour video monitoring of her and about 50 wires connected to her head to monitor her brain. They also wanted to put her on anti-seizure medication, which is were my mommy instinct kicked in and I wouldn’t consent to because I didn’t think it was necessary. Even after a neurologists and a neonatologist tried to explain to me that they highly recommended putting her on it I wasn’t convinced it was necessary. I felt as though they had a possible cause for the seizures, which was the low sodium and electrolyte levels, and they were able to stop them with the baby valium. The way I looked at it was if they were treating her by giving her more sodium AND they were treating her with the anti-seizure medication then how would we know which one was working to prevent any further seizures. Thankfully, I feel like I made the right choice. Her sodium levels are normal and she hasn’t had a seizure since yesterday morning!!
Now I’m just waiting for her body to heal up so we can ease her off the pain medication and I can hold her in my arms again!!