Although I’m trying to stay positive, I’m getting really frustrated. I spoke with her team of doctors yesterday and they told me that the possibility of her having to be here for another month MAYBE TWO is not out of the question!! Her getting discharged all depends on how her body adjusts to the feeds.
They started feeding her this Monday and are increasing the amount VERY slowly. Right now they are only feeding her via a nasogastric tube (also called an ng tube)- which is a tube inserted into her nose and goes down to her stomach. She is being fed this way so they can give her a continuous feed of a very small amount of breast milk to just coat her intestines and see how her body processes the food. They started with 1ml going through the tube every hour for the first two days, yesterday they increased it to 2ml, and today they increased it to 3ml. They even talked about letting her get a bottle tomorrow along with the ng tube feedings. Thankfully so far her body seems to be handling the feedings well, but we will see what happens as they increase the amount.
Here are some pictures of her pre and post surgeries.
This picture is the day before they rushed her in for emergency exploratory surgery to find out what was going on with her belly. Not only is her belly completely distended, but the look of agony on her face is heartbreaking…I can’t even imagine how much pain she was in!
This is a picture of her ileostomy, The red circle on her belly is her actual intestine connected to the outside of her stomach. The other half is under the gauze.
This is what her belly now looks like-8 days after her reconnection surgery. They said the scar will get much thinner as it heals. The tube on her upper chest is her broviac. This is currently how all the nutrients she needs is getting into her body.
and here’s some fun ones I took of us today while we were bored…