It seems like the minute I get excited about how things are going, the very next day everything starts going wrong and we are back to square one! Not only is it agonizing watching my 5 week old daughter go through this, but being away from my family for such long periods of time is really starting to take it’s toll on me.
Peyton’s still not gaining weight like she needs to so they have decided to reinsert a picc line for her so she can get additional nutrients intravenously along with her bottle feedings. Her bottle feedings consist of breast milk mixed with fat lipids. They add the fat lipids to give her even more calories in hopes she will fatten up!!
THE PICC LINE NIGHTMARE!!They sedated her with morphine on Friday and tried to insert the picc line by her bedside, but after almost 2 hours of poking and prodding at her they unfortunately weren’t successful.
Today they took her to interventional radiology to have it inserted. This requires even heavier sedation and they do a continuous xray so they can see where the picc line is going as they are feeding it through her arm.
They successfully got it in HOWEVER it fell out tonight after only a couple hours of having it put it!!! It was quite traumatizing for me with the amount of blood that was coming out of her little arm. SO now tomorrow she has to go back there again for more sedation and more xrays to have it reinserted. I honestly can’t even cry anymore…I just feel numb at this point!
Thankfully Radek seems to be holding up really well thanks to the help from my AMAZING friends and family. I honestly can’t even imagine how much worse this situation would be without their help!
I have lost count of all the xrays, heel pricks, and needle sticks she’s had, but I’m pretty sure for each one the number is close to if not over 100!!