Wednesday, July 20, 2011

Peyton's AMAZZINGGG Progress!!!

I am happy to report some REALLY REALLY good news about Peyton.  She is off the bilirubin light ANDDDD she is coming off the ventilator this afternoon!!!!!!   So now she can see since she doesn’t have the goggles on for the light, she can breath on her own, she can make little baby noises since the vent tubes not down her throat, ANNDDD I can hold her allll the timeeeee whenever I want!!!!!!!!!!!
 
It’s been 6 days since my world turned upside down and for the first time in those 6 days I can’t stop smiling.  I’m home spending quality time with my favorite little guy, Peyton’s improving and I get to take him to see her tomorrow!!! 

The doctors talked about possibly introducing her to food in the next day or two “she’s been being fed nutrients through a picc line” and depending on how that goes and how long it takes her belly to adjust will depend on when we get to take her home.  At this point, I’m not even worried about that, I’m just enjoying every minute of the current progress she has made thus far!!!!!
 
Peyton is by far the strongest toughest baby I have ever seen in my life!!  Three days ago I thought there was a chance I wouldn’t be able to bring her home because I didn’t think she would survive and now in three short days she has pulled through tremendously!!!

Thinking about all the things she has gone through already in her 6 short days of life is both heartbreaking and amazing!!!

Tomorrow I’m bringing Radek to meet her and I CANNOT WAIT!!!!  I’ve been talking about her to him since I found out I was pregnant with her trying to get him prepared.  I even bought him a little doll that we named Peyton to get him ready for his big brother duties and as you can see from the pictures below I think he’s going to do great!!!
big brother 1
big brother 2
big brother 3
I’m hoping he can avoid using her as a jump for his monster trucks at least for the first couple weeks Smile

2 comments:

  1. So glad things are going better for you!!!

    ReplyDelete
  2. Fabulous news Jamie!! I's so happy to hear about Peyton's progress. :)

    ReplyDelete

LinkWithin

Related Posts with Thumbnails

Labels

17 months old (1) 20 week ultrasound pictures (1) 24 week ultrasound pictures (1) 2nd Annual Halloween Playdate (1) 30 weeks pregnant (1) 32 weeks (1) antibiotics (1) apples (1) applesauce (1) avoided a hospitalization (1) baby girl (2) Baby Girl Update (7) baby girl update (2) babysitting (1) belly pics (2) Big Boy Room (1) breastfeeding (1) breathe sticker (1) breathing treatments (2) bronx zoo (1) bulldozer (1) camera suggestions (1) Cereal (1) cf awareness video (1) cf cholocate chip cookies (1) cf mamas (1) cf medications (1) cf mommy skills (1) cf sucks (1) cf surgery (1) CFRI Conference San Francisco (1) chest cold (1) Christmas Morning 2010 (1) Christmas Photo Shoot (1) cirpro (1) Clinic Visit Update (3) Coupons (1) cpt (1) current medication and treatments (3) cvs (1) Cystic Fibrosis Masquerade Ball (1) date night with Rad (1) day trips (1) delta f 508 (1) dress up (1) Easter 2011 (2) Easter Egg Hunt (1) enzymes (5) exercise during pregnancy (1) extra treatments (1) favorite pics of 2010 (1) feeling defeated by cf (1) Finding out the cf dx for the SECOND TIME (1) fire trucks (1) First Birthday (1) flash back (1) Flash Me Friday (5) florida getaway (1) flovent (1) fun filled weekend (1) fun photos (1) fun times at the park (1) fun weekend photo's (1) Fundraiser (1) fundraisers (3) fundraising (2) georgia (1) getting rid of toys (1) Getting the amnio (1) good fortunes (1) great strides (3) halloween parade (1) healthy at last (1) helpful mealtime strategies (1) hiking (1) hospitalization (5) hospitalizations (1) How Radek got his name (1) hypertonic saline (1) hypertonic saline treatments (1) It's a Boy (1) it's a boy thing (1) jens wedding (1) July 2010 Clinic Visit (1) kind words (1) leaving for the beach (1) lessons learned (1) Light Up Shoes (1) loving toddler life (1) meconium illeus (1) minnesota (1) Mohonk Mountain House (1) monster jam (1) monster trucks (1) Months 1-12 (1) Musikfest (1) My Favorite Things (1) new cf clinic (1) new treatments (1) ng tube (1) nice weather (1) nicu (1) Nursery (2) October 09 (1) Our First Getaway (1) our trip to the pumpkin patch (4) outrun cf (1) outsmarting Radek (1) peyton is FINALLY home (1) Peyton's new hospital room (1) peytons 7 month pictures (1) Peytons newborn photo's (2) Peytons recovery (22) photo booth fun (2) photography contest (1) PICC line (1) pictures from the beach (1) Pictures from the NICU (1) playing in the snow (1) playing outside (1) please touch museum (2) plus side of treatments (1) Poop (1) pregnancy cravings (1) pseudomonas (4) pumpkins (2) punishment (1) rad and his cousin (1) Rad Meeting Peyton (1) Rad's trip to the Zoo (1) Radek and Santa (1) Radek Loves (1) radek loves to breathe logo (1) radek's current health status (14) Radek's Gene Mutation (1) Radek's Large Appetite (1) Radek's Sick :( (1) Radek's third hospital admission (1) Radeks Birthday (1) Radeks impression of our Mean Cat (1) Radeks list of demands (1) Radeks LOVE for Cars (1) Radeks WUS THAA phase (1) Rads first time using chopsticks (1) Rads Second Birthday Party (1) rainy day fun (1) raisins (1) recipe (1) salty skin (1) scuba diving (1) Setbacks (1) sickness (1) smoking (1) snacks (1) soap box derby (1) spring is right around the corner (1) stomach bug (1) swimming (1) synagis injections (3) team radek loves to breathe (1) thankful for cf (1) thanksgiving (1) the official cf dx of my unborn child (1) the possibilty my baby could have cystic fibrosis (1) the time out bench (1) Things we do for our kids (1) this time last year (1) three days to get better (1) tobi (1) trampoline to help clear mucus (1) vacation (1) Valentines Day (1) vest (1) weaned from the pacifier (1) Wordless Wednesday (8) worst week ever (1) Xopenex (1) Yo Gabba Gabba Live (2)

Total Pageviews